Chronic Illness, Depression, Diabetes Distress, For Diabetics, For Family & Friends, For Medical Professionals, Mental Health, Type 1 Diabetes

Stress, a Pandemic, and Everything Else…

Is the pandemic stress getting to anyone else?

I feel like the stress of the pandemic is continuing to catch up to me in new and weird ways every day. I am quite sure this is not chronic illness specific, and instead is the direct result of being in a state of constant vigilance with just staying alive for the past year and a half plus.

Humans aren’t meant to be in a state of fear, disbelief, or really in any state but equilibrium for this long. Between the uncertainty, the changing guidance (which is how science works!), and having a ton of extra things to remember all the time (do I have a clean mask in the car? Does this outfit have pockets that support the size hand sanitizer I have with me right now?), it occurs to me that managing a chronic illness and managing the pandemic stuff are not that different. Add in the stupid advice and opinions of people who are totally not qualified to give it or have one and you essentially have a LOT of the diabetic experience.

The pandemic has been hard on everyone, and I am no exception. Prior to the pandemic I had learned a lot about my body’s response to stress thanks to a tough job with some unreasonable expectations. I got sick all the time and my blood sugars were consistently running higher than average (around 180-200 on average). The pandemic showed me some new things, including the fact that I love food and my bicycle, and that those two things are complimentary, but neither one is easy on my diabetic body on its own.

I also have learned a lot about how my diet and insulin needs vary tremendously during times of stress. Cortisol is not my friend. Recently I’ve experienced a big change in my job, long term career goals, and self-expectations. I’ve also been balancing friends and family; issues and goals. I’m thinking about the future A LOT and my blood sugars look like it.

One day recently, for instance, I ate blueberry oatmeal for breakfast. I was working on a couple of stressful meetings and had listened to the news while I was answering email. This was a folly. I took NINE UNITS of insulin for my 45-carb breakfast. AND I STILL WENT HIGH. All of this to say, stress shows diabetics how damaging it can be, but it’s important for EVERYONE to remember this, even if your oatmeal goes down fine and you don’t experience weird, momentary insulin resistance whenever you have a bad day.

Keeping this in mind, I’ve been working through some solutions to handling this stress and wanted to share them here:

  1. Drink more water and clear fluids. Good advice for everyone because, hydration. If you happen to be a diabetic who also has experience with stress/blood sugar induced UTIs, the constantly needing to pee will be good for that. It will also force you to occasionally go into the bathroom and get away from your desk.
  2. Get more sleep. Truly. Sleep deprivation is a stressor to your bodily systems anyway, so being actually mentally/emotionally stressed on top of it is not helpful. Also, sleep deprivation does WILD things to blood sugar and insulin resistance.
  3. Get better sleep. Back away from the screens earlier if you can help it. If you’re me, just try to stop falling asleep looking at Brooklyn 99 memes on Pinterest with your phone in your hand. Also, wear something different to bed than what you’ve been lounging in, and create a “routine” of sorts, even if it’s just pajamas-check blood sugar-brush teeth-go to sleep.
  4. If the news stresses you out (see the blueberry oatmeal situation above) try going for a walk or getting some other exercise while you’re listening to help contradict the stress hormone effects. Then turn the news off. A lot of it seems like a rerun of bad shit anyway.
  5. Find foods that are healthy and can safely be stress eaten. I’m an emotional eater. I eat happy and I eat sad and when I’m stressed having something to crunch on makes a world of difference. I find that air popped popcorn, carrots with low-fat ranch, and fruit with some protein on the side (Peanut butter, yogurt, and string cheese are my usual go-tos) are all good options. That said, everyone is different. Find your healthy stress food and stick to it.
  6. Walk away. Feel like you’re going to explode? Yelling obscenities at the screen (or a person)? Did you seriously consider throwing something? Stand up and walk away for a minute. Truly, just one minute can make a huge difference. I pet the dog, I pet the cat, I walk downstairs to refill my coffee, and all of these things help me keep my sanity and my professional and personal relationships. Sometimes I walk away to find my Xanax when my blood sugar is 400 and I’ve passed the point of being able to calm myself down. It’s about balance.
  7. Unclench your jaw. Seriously. It’s clenched and your brow is furrowed. Let your mouth hang open for a second. Pretend you’re shocked and do your best Pikachu face to help un-furrow your brow. Pain is also a blood sugar trigger.
  8. WALK AWAY FROM THE CAFFEINE FOR A MINUTE.  The shaking from the caffeine is not helping the nervousness your central nervous system continues to claim. Caffeine also impacts blood sugar. Ask yourself-is a cheetah chasing me, or have I just had three cups of coffee on an empty stomach? 
  9. Set boundaries and keep them. You have an appointment-keep it. You have plans with friends or family-keep them. Don’t cancel for work unless it’s absolutely necessary. Don’t make yourself crazy doing things you “think” you should do instead of things you should and can do. Again, balance. You don’t want to talk about a subject that stresses you-don’t. You want a different pedicurist because this guy is hard on your hands and you don’t trust him with your feet (a real example)? Ask for someone else. Set boundaries for yourself in every area of your life and then stick to those even when they’re hard.
  10. Say “No” when you don’t want to do something and ask for something when you do want it. Resentment builds up when you don’t do either of those things; disappointment sets in when you only do one and expect the other to follow. No, I can’t take on one more project right now. Can someone please give me a hand with this? Justin, can you please handle dinner so I can ride my bike? (Etc., Etc., you get the point!).
  11. Figure out what foods you absolutely can’t consume while you’re stressed out. There are some for all of us. For me, several of these items are traditional comfort food (like mac-and-cheese or pizza). It sucks, but eating those things is just going to cause me hours and hours of painful blood sugars. Not worth it. Find alternatives and learn to love it, or doctor it up to make it what you want.
  12. Take notes. I frequently bitch about my body feeling like a science experiment, but really, the principles of effective science experiments apply. Take notes on what certain foods or situations cause you pain or impact your blood sugar. Write down how much insulin you took, what stressed you out, etc. Try to duplicate those experiences (when it’s safe to) to verify the results. Then take those notes to an actual doctor, CDE, or therapist and use their fancy-science based degrees to help you make informed decisions about your care and the way you handle stress.
  13. Finally, take care of your needs first whenever you can. There’s a reason why they say on airplanes to put on your own mask before you help the people around you. You’re not useful to yourself or to other people when you’re not taking care of yourself to the best of your ability. I love this expression and it’s fitting here: “Don’t set yourself on fire to keep other people warm”. Truer words have never been spoken. If you don’t care for you, there won’t be a you to care for anyone else. Chronic illness makes this process just take less time than it does for other people. So take care of yourself and then you can take care of others.

Featured Image Credit for this article: https://unsplash.com/s/photos/calming

Depression, For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

I’m Free! Start and End Dates Part 2.

I’M FREE.

Guys, it’s been two, TWO, whole days since my thirtieth birthday and I’m still here.

WE MADE IT!

I’m so excited to be starting this new chapter of my life; this chapter without a set end date. I’m free from those prognoses dates and I truly feel different as I go into my thirtieth year.

As part of my diabetes treatment plan, I work with a therapist who helps me keep my mental health in check so I can keep my physical health in check. I’m a firm believer that we have to care about our mental well being just like we have to care about our physical health.  There will be several posts about this in the near future.

When I walked in yesterday for my appointment, she said, “Hey! You don’t look dead to me. Congrats!” (She’s awesome and that sense of humor is one of the several things we have in common.)

She’s very right. I’m very much alive.

Riding that high, I took some time Thursday through today to really reflect on my life and how fortunate I am. I did some tough reflecting on how it all has gone and what I’m doing with the next many years of my life. I took a moment of silence and prayer for the people I lost along the way, as there have been several and each birthday and diabetes diagnosis anniversary reminds me that others weren’t so fortunate.

I don’t know what would have been easier. My future mother-in-law passed away in December from complications from Type 1 Diabetes. She was diagnosed in her early thirties after she’d had her two boys and had been living her life eating and doing what she wanted.  When she passed, her and I had had diabetes for about the same amount of time.  It’s hard for me to imagine being diagnosed as an adult and having to adjust an entire life around something that I didn’t know anything about until I had it. I know people do it, but in some ways, I do feel my situation was more fortunate.

That said, I don’t remember life before this disease, but I know from reflecting and living it and working through some of it with my therapist that growing up with it had its own challenges. I know that my physical development was impacted by diabetes and that my psychological and emotional development was hammered on by type 1 diabetes.

I know that by the time I was graduated high school, I had lost several close friends from the thing I was constantly being told would ultimately kill me. I remember waking up at age 9 after a very serious low blood sugar in the back of my parent’s mini van at an amusement park where I had crashed.  I know that I experienced survivor’s guilt for the first time when I was 11, and I’d experience it many more times in my life.  I remember being 14 on a school chorus field trip and we went to sing to the patients in the dialysis lab; I came back to my mom’s office after school and sobbed into her arms because I felt so afraid.  I know that at 29 I watched the man I love struggle with the loss of his mother from the same disease his future wife has.

I don’t mention all of these things in what is ultimately supposed to be an upbeat post because I’m garnering your sympathy. Instead, I list these things out to try to reflect on the things I lived through in this first thirty years of my life. I’m considering these experiences building blocks for whatever is coming. If you believe in the butterfly effect, I had to be a diabetic in order to live this life, and I had to have everyone of these losses and scares to be here now, writing to all of you.

I’ve said it before, and I’ll say it again; I’m so fortunate. My diabetes gave me a purpose and a platform and a complex and a lot of good things and a lot of not as great things.  My diabetes made me the person I am, and at thirty I’m really starting to like me.  When I talk about being grateful for this life, I truly don’t know how or why I was born this lucky. But I believe my diabetes, the people I’ve met, helped, known, loved, and the things I’ve experienced, are absolutely a part of the reason I’m here. On Earth, still existing despite being told how extremely unlikely it was that I wouldn’t.

I’m still finding my purpose, but I’m excited to live life without an end date.  I’m going to take this next year and rock it.

If you’re interested in sharing what you’re going to do with this next year, we’re all ears here. Send me an email, share a comment on the post, or message or post to us on Facebook. This life is most fun with all of us in it. 

With Love and Light,

-Megan C.

Depression, Diabetes Distress, For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

So why are we here?

Let’s be real for a minute.  There are a LOT of online forums, resources, groups, events, and hashtags associated with Type 1 Diabetes.

The American Diabetes Association shares that 30.3 million people in the United States have diabetes, with 1.25 million people living with Type 1 Diabetes right now.  That’s a lot of individuals with a lot of online activity! (For more on that, click here.)

Diabetes can get lonely.

Tonight on our way home from dinner and shopping, I was explaining that diabetics have higher percentage chances of experiencing depression and anxiety.  Justin wondered aloud why that is, which got us on the topic of “fault”.  Diabetes is a unique disease because there’s so much criticism and judgement involved.

Sometimes with chronic illnesses people express pity and concern.  With diabetes, they do that -and sometimes (far more often than is appropriate or necessary- they say things like “If you just took better care of yourself!” or “I don’t know why you can’t just eat better,” or my personal favorite when something bad happens, “Why didn’t you do X, Y, Z!”

All too often, these folks are doing EXACTLY THE THINGS THEY TELL YOU NOT TO. It’s next level infuriating.

These folks are trying to be helpful, but they isolate us.  They intentionally or unintentionally guilt us into feeling like our diabetes and complications and lows and highs are our fault.  They are not.  These people are wrong, and I do not care who they are.  Sometimes even people we care about and trust are wrong.  This is your PSA for today.

Type 1 Diabetics are just people. We are not God. We are not all powerful.  Most of us are just every day people without medical degrees who are just trying to survive and live our best lives.  We do complicated mathematics calculations, utilize thousands of dollars of medical equipment, act as our own EMTs, trainers, and advocates, we take on insurance companies, etc. and we are just people.  That’s it.

We can do a lot to make our own lives better. Everyone wants to make their own life better, and if you have a chronic illness, diabetes or otherwise, it probably crosses your mind at least once a day that life could be better.

So let’s do some things to make our lives better for us.  Not for the people who guilt or demand or blame,  or even the people who love and support and care, but for us.

One of those things we can do is reach out to other people and get support and advice.  We can vent and feel understood.  We can be validated and feel motivated.  We can troubleshoot.  We can be together.

We don’t have to be alone, and more importantly, we don’t have to be lonely.

That’s why we’re here.  That’s what this site is for, at its most basic core.  We are here to be here for ourselves.  We are here to share this space and our stories with each other.

We are here to make lives better.

As you peruse this site, keep in mind that we (Justin, the other collaborators, and myself) are just people.  We’re people who want our lives to be better, and we’re people who want you to feel better too.

Disclaimer-most of us are NOT medical professionals. We’re just here, telling our stories and wanting to hear yours.

Type 1 Diabetes sucks, but you are not alone, and you don’t have to be lonely.

Sending you love and light,

Megan

Depression, Diabetes Distress, For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

These high blood sugars are the WORST…

I have the tech (a CGM) that would prevent me from being caught off guard by these things. I’ll be honest, I don’t always wear it as consistently as I probably should. There are a lot of reasons for this, including a consistent, deep desire and need for sleep.

My CGM system wakes me up FREQUENTLY, so I’m always a little more hesitant to wear it when I’m already struggling with sleeping – which I am right now.

Despite that, today I took myself out for a lovely Sunday. I went to the pet store (my cat needed a feeder toy), the pharmacy (yay for out of pocket med costs!), and went on a nice stroll through Target (the candle section right now is DOPE).

During all of this, I got progressively more lethargic and seriously thirsty, so I grabbed an iced coffee (we live in a Starbucks void so Target Starbucks is all I’ve got) and headed home.

Y’all, I almost stopped for a bottle of water. To go with my iced coffee (with Splenda, and I bolused for the cream). On my 15 minute ride back to my house. I was panting.

I got home safe and sound but after getting here and being here a bit I still wasn’t feeling better. And so I checked. And it was 566.

THE WORST.

I have not had a high like this in a long time. I sat on the floor and drank water and took insulin and waited.

90 minutes and three (Yes three!!!!) correction boluses later, I was under 500. Barely, but under 500.

We went and paid the rent and found dinner (including multiple glasses of water and a giant diet soda that tasted like heaven).

Finally, now, three hours later I’m back in normal range, with a full stomach and no headache.

I chronicle this experience for the sole reason of pointing out that in the next two days I’ll be having a diabetes anniversary of 28 years, and I STILL have days like this.

That’s because sometimes T1D is a lawless $#@*! It doesn’t follow the rules. It doesn’t care about your self care like it’s supposed too.

I’m playing on expert mode, and I still have these moments.

And if you are a diabetic, or know a diabetic, I know you have these moments too.

It is okay. We are not failing. We are living with diabetes.

For All of Us Having One of These Days, Sending Lots of Love and Light,

Megan