Category: Type 1 Diabetes

For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

Start and End Dates-Part 1

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It’s officially my 28th year as a diabetic. My “Start Date” is September 3, 1991.

It’s sometimes hard to imagine what life would be like without diabetes.  Like a weird, terrible sidekick that never leaves me alone, diabetes feels like it’s been here forever.

In all seriousness though, I don’t remember life before diabetes became a part of it.

I was diagnosed two days before my second birthday. My family was devastated and my body was traumatized. My hair fell out and I had to be re-potty trained. I was not expected to live to my second birthday (two days later), and the thought of surviving to Kindergarten seemed like a slim hope.

But doctors are not God. They don’t get to decide who of us lives and dies. They just get to offer statistics and assistance and answer questions along the way.

My nuclear family was just my mom, my dad, and I when I was diagnosed. My family put a lot of things on hold (including my siblings) for a few years while I continued to survive and eventually thrived. It wasn’t easy, but they were willing to make it work.  They were willing to wait for me. They were willing to work for me. They were willing to step back or step in, depending on what I needed in that moment.  As my siblings arrived, they did the same.  I’m so grateful they didn’t give up.  So this is a congratulations to our whole family on this one-we made it!

I’ve kept a fairly positive attitude all these years, despite the dismal prognoses that I’ve been handling and the loss of many important people along the way. Diabetes is ruthless-it does not care who you are, or how old you are-you have to deal with it. But I’ve tried to keep upbeat and remember that it’s not just about me.   I would do anything for the people I love, and that includes whatever I have to do to stay healthy and alive.

My family, now inclusive of several more people than when this started, has helped me maintain that attitude with a combination of tough love and motivation. Now, my fiance continues to help with support, love, and a willingness to listen and troubleshoot. They’re not all good days, but between my family, friends, and fiance, I’m not in this alone. They’re all here and I’m so grateful.

As I go into this 28th year of diabetes, I’m proud of myself and the work that I’ve done, but I’m admittedly anxious to see what lies ahead. See, 30 was my final prognoses date.  “If she makes it to 30…” was a statement I’ve actually heard medical professionals (more than one!) make.

I turn 30 in 2 days. On September 5, 2019 I will have outlived the expectations. I will have officially exceeded these ridiculous expiration dates for my life. I will not have an end date after all.  

I’ve done SO MUCH in the past 28 years. I’m not entirely convinced that some of those accomplishments weren’t made simply because in the back of my mind there wasn’t ever going to be enough time. And who knows how much time any of us have, really.  But, they are not God. I am not God. We don’t get to decide that. We get to live in this world, in these bodies, and we get to keep going.

So I’m not going to wallow, or quit, or take up motivational speaking (not today, anyway). Instead, I’m going to take this 28th year in this body, with this illness, and I’m going to rock it. 

I’m going to marry my best friend in 101 days. I’m going to be a really, ridiculously cool aunt to the babies in my biological and chosen family that will be arriving this year. I’m going to travel and see things I haven’t seen yet. I’m going to operate my businesses and take big career chances. I’m going to succeed. And most importantly,  I’m going to spend time with the people I love and I’m going to live my life without an end date.

I’m going to live my life without an end date.  That’s what I’m doing with this 28th year.  That’s what I’m going to do with 30.

 

 

 

Depression, Diabetes Distress, For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

So why are we here?

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Let’s be real for a minute.  There are a LOT of online forums, resources, groups, events, and hashtags associated with Type 1 Diabetes.

The American Diabetes Association shares that 30.3 million people in the United States have diabetes, with 1.25 million people living with Type 1 Diabetes right now.  That’s a lot of individuals with a lot of online activity! (For more on that, click here.)

Diabetes can get lonely.

Tonight on our way home from dinner and shopping, I was explaining that diabetics have higher percentage chances of experiencing depression and anxiety.  Justin wondered aloud why that is, which got us on the topic of “fault”.  Diabetes is a unique disease because there’s so much criticism and judgement involved.

Sometimes with chronic illnesses people express pity and concern.  With diabetes, they do that -and sometimes (far more often than is appropriate or necessary- they say things like “If you just took better care of yourself!” or “I don’t know why you can’t just eat better,” or my personal favorite when something bad happens, “Why didn’t you do X, Y, Z!”

All too often, these folks are doing EXACTLY THE THINGS THEY TELL YOU NOT TO. It’s next level infuriating.

These folks are trying to be helpful, but they isolate us.  They intentionally or unintentionally guilt us into feeling like our diabetes and complications and lows and highs are our fault.  They are not.  These people are wrong, and I do not care who they are.  Sometimes even people we care about and trust are wrong.  This is your PSA for today.

Type 1 Diabetics are just people. We are not God. We are not all powerful.  Most of us are just every day people without medical degrees who are just trying to survive and live our best lives.  We do complicated mathematics calculations, utilize thousands of dollars of medical equipment, act as our own EMTs, trainers, and advocates, we take on insurance companies, etc. and we are just people.  That’s it.

We can do a lot to make our own lives better. Everyone wants to make their own life better, and if you have a chronic illness, diabetes or otherwise, it probably crosses your mind at least once a day that life could be better.

So let’s do some things to make our lives better for us.  Not for the people who guilt or demand or blame,  or even the people who love and support and care, but for us.

One of those things we can do is reach out to other people and get support and advice.  We can vent and feel understood.  We can be validated and feel motivated.  We can troubleshoot.  We can be together.

We don’t have to be alone, and more importantly, we don’t have to be lonely.

That’s why we’re here.  That’s what this site is for, at its most basic core.  We are here to be here for ourselves.  We are here to share this space and our stories with each other.

We are here to make lives better.

As you peruse this site, keep in mind that we (Justin, the other collaborators, and myself) are just people.  We’re people who want our lives to be better, and we’re people who want you to feel better too.

Disclaimer-most of us are NOT medical professionals. We’re just here, telling our stories and wanting to hear yours.

Type 1 Diabetes sucks, but you are not alone, and you don’t have to be lonely.

Sending you love and light,

Megan

Depression, Diabetes Distress, For Diabetics, For Family & Friends, For Medical Professionals, Type 1 Diabetes, Uncategorized

These high blood sugars are the WORST…

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I have the tech (a CGM) that would prevent me from being caught off guard by these things. I’ll be honest, I don’t always wear it as consistently as I probably should. There are a lot of reasons for this, including a consistent, deep desire and need for sleep.

My CGM system wakes me up FREQUENTLY, so I’m always a little more hesitant to wear it when I’m already struggling with sleeping – which I am right now.

Despite that, today I took myself out for a lovely Sunday. I went to the pet store (my cat needed a feeder toy), the pharmacy (yay for out of pocket med costs!), and went on a nice stroll through Target (the candle section right now is DOPE).

During all of this, I got progressively more lethargic and seriously thirsty, so I grabbed an iced coffee (we live in a Starbucks void so Target Starbucks is all I’ve got) and headed home.

Y’all, I almost stopped for a bottle of water. To go with my iced coffee (with Splenda, and I bolused for the cream). On my 15 minute ride back to my house. I was panting.

I got home safe and sound but after getting here and being here a bit I still wasn’t feeling better. And so I checked. And it was 566.

THE WORST.

I have not had a high like this in a long time. I sat on the floor and drank water and took insulin and waited.

90 minutes and three (Yes three!!!!) correction boluses later, I was under 500. Barely, but under 500.

We went and paid the rent and found dinner (including multiple glasses of water and a giant diet soda that tasted like heaven).

Finally, now, three hours later I’m back in normal range, with a full stomach and no headache.

I chronicle this experience for the sole reason of pointing out that in the next two days I’ll be having a diabetes anniversary of 28 years, and I STILL have days like this.

That’s because sometimes T1D is a lawless $#@*! It doesn’t follow the rules. It doesn’t care about your self care like it’s supposed too.

I’m playing on expert mode, and I still have these moments.

And if you are a diabetic, or know a diabetic, I know you have these moments too.

It is okay. We are not failing. We are living with diabetes.

For All of Us Having One of These Days, Sending Lots of Love and Light,

Megan